Resources

Definitions | Ageing as an LGBTQ+ Person  | Needing CareDeath Planning | Grief and BereavementCaring for Yourself and OthersMoney Matters | Resources  


 

Contents 

 

Ageing as an LGBTQ+ Person 

Death Over Dinner 

Invite you to participate in the most important dinner conversation Australia is not having. It’s time to share your end-of-life wishes and plan a dinner to help others share theirs.  

HIV/AIDS Legal Centre NSW 

HALC provides free and comprehensive legal assistance (within operational guidelines) to people with HIV or Hepatitis-related legal matters and undertakes Community Legal Education and Law Reform activity in areas relating to HIV and Hepatitis.  

Positive Life NSW 

The peer-led and run representative body of all people living with HIV based in NSW, and the voice of all people living with HIV in NSW.   

Seniors Rights Services 

Works to raise awareness and empower older people to activate, uphold, extend and defend their individual rights. We foster communities to respect and value seniors and their rights. We achieve our purpose by providing legal services, aged care advocacy and community education.   

 

Needing Care 

Dying with Dignity NSW 

Advocacy organisation pursuing a change in the law that will enhance choice at the end-of-life. We seek legislation that enables competent adults, experiencing unbelievable suffering from a terminal or incurable illness, to receive medical assistance to end their life peacefully, at a time of their choosing.  

Making an Advance Care Directive 

This information booklet provides information to help you complete your Advance Care Directive. An Advance Care Directive form is provided at the end of the booklet, for you to complete and tear off.  

Palliative Care NSW 

Empowers health professionals and the broader community with the resources to ensure all people approaching and reaching end-of-life, and their families, have access to quality palliative care.   

Positive Life NSW   

The largest peer-led and run representative body of all people living with HIV in Australia based in NSW, and the voice of all people living with HIV in NSW.   

Related Articles 

A Journey into Sorry Business: Palliative care support information for Aboriginal and Torres Strait Islander People.  

10 Practical Tasks to Help You Deal with a Terminal Illness. By Chris Raymond 2020 

Five common myths about palliative care and what the science really says. By Anna Collins Research Fellow, Department of Medicine, The University of Melbourne 

For LGBTQ elders, palliative care can alleviate aging’s obstacles. This article originally appeared in Philadelphia Gay News on August 29, 2019. 

 

Death Planning 

Advance Care Planning Australia 

Advance care planning is thinking about and documenting your preferences for future health care. It prepares you and others for a time when you may no longer be able to communicate those decisions.  

Body Donation 

The following medical schools have donation programs. 

Macquarie University Body Donations Program 

University of Newcastle Body Donor Program 

University of New England Body Donor Program 

University of NSW Bequeathal Program 

The University of Sydney Body Donor Program 

University of Technology Sydney Body Donation Program 

University of Wollongong Body Donation Program 

 

Cemeteries & Crematoria NSW 

Options for burial, cremation, funerals and ways to commemorate life 

Choice - Guide to Funerals 

Including what to do after a death, and your legal rights in organising what happens after death. 

Death Over Dinner 

Invite you to participate in the most important dinner conversation Australia is not having. It’s time to share your end-of-life wishes and plan a dinner to help others share theirs. 

Digital Death Planning 

End-of-life-care: Why having a ‘digital’ death plan is essential to dying with dignity. 

Digital Health Australia 

Online health care services, including My Health Record, electronic prescriptions and telehealth. 

Donate Life 

Organ and tissue donation can save and transform the lives of those Australians who receive a transplant. 

Dying with Dignity NSW 

Advocacy organisation pursuing a change in the law that will enhance choice at the end-of-life. We seek legislation that enables competent adults, experiencing unbelievable suffering from a terminal or incurable illness, to receive medical assistance to end their life peacefully, at a time of their choosing. 

End-of-Life Doulas Directory 

End-of-Life Doula Directory is an independently run directory especially for end-of-life doulas and consultants.  

Go Gentle Australia 

Supports legal changes to allow voluntary assisted dying in Australia.  

How to make a valid will 

State Library of NSW 

LGBTQ+ friendly funeral services 

Making an Advance Care Directive   

This booklet provides information to help you complete your Advance Care Directive. An Advance Care Directive form is provided at the end of the booklet, for you to complete and tear off.  

My Health Record 

My Health Record is an online summary of your key health information. When you have a My Health Record, your health information can be viewed securely online, from anywhere, at any time – even if you move or travel interstate. You can access your health information from any computer or device that’s connected to the internet. 

Natural Death Care Center NSW 

Promotes a holistic approach to celebrating death and life. 

NSW Trustee and Guardian - Make a Will 

Have peace of mind your wishes will be respected, and your loved ones are taken care of by making a valid Will, appoint the Executor and Power of Attorney. 

Organ Donation 

Encouraging all Australians to talk about organ and tissue donation. If you want to be a donor, make sure you tell your family and friends. 

Palliative Care Australia 

Palliative Care Australia is the national peak body for palliative care.

Safe Will 

ACON has partnered with Safe Will, an online service where you can start, complete and update your bespoke will at any time. There are no fees until you are ready to submit your will. 

Safeguarding the End of the Rainbow - Victoria 

A guide to help LGBTI people to plan an end-of-life of their choice. 

The Groundswell Project 

The Groundswell Project works with individuals, organisations and communities to improve how people in Australia die, care and grieve. 

Your Goodbye Honouring Life 

Your Life Matters and so does your funeral. 

 

Grief and Bereavement

The National Association for Loss and Grief (NSW) 

Offer grief support by telephone, although they are not a crisis centre.  

They also offer a variety of brochures on dealing with various forms of grief

Grieflink  

Factsheet on grief reactions following the death of an LGBTIQ partner. 

ACON 

Providing mental health support for LGBTQ people and people with HIV by providing a range of counselling services and a care coordination program. 

Q Life  

Provides Australia-wide anonymous, LGBTI peer support and referral for people wanting to talk about a range of issues including sexuality, identity, gender, bodies, feelings or relationships. 

Twenty 10 

A Sydney based service working across New South Wales, providing a broad range of specialised services for LGBTQIA+ people 12-25 including counselling. 

Reach Out 

Delivering digital mental health and wellbeing programs, backed by an in-house digital team. 

Lifeline 

A national charity providing all Australians experiencing emotional distress with access to 24-hour crisis support and suicide prevention services. 

Beyond Blue 

Provides information and support to help everyone in Australia achieve their best possible mental health, whatever their age and wherever they live. 

 

Caring for Others 

Carers Australia 

Carers Australia advocates and lobbies on a wide range of issues that affect carers, to influence national policies and services. Carers also work collaboratively with other organisations, including their network of state & territory carer organisations, to develop policies, programs, services, and events to improve the lives of Australia’s carers – supporting them and upholding their rights. 

Carers NSW 

Provides information, education and training, resources and referrals to support carers.  

Care Search – Palliative Care Knowledge Network 

Provides online access to evidence on palliative care. 

CarerHelp 

The Australian Government has funded two CarerHelp projects.  

The first project, CarerHelp Project, ran between 2017 and 2020 established the CarerHelp website after a review of the evidence, scanning for Australian resources and interviews with carers.  

The second CarerHelp Diversity project will run between 2020 and 2023. As well as maintaining the CarerHelp website, the primary aim of the funding is to ensure that CarerHelp is accessible and able to reach a diverse population of Australian family carers.  

CarerHelp: Being an LGBTIQA+ carer 

 

Money Matters 

Safe Will 

ACON has partnered with Safe Will, an online service where you can start, complete and update your bespoke will at any time. There are no fees until you are ready to submit your will.  

Understanding Super  

Super can be confusing. It’s full of jargon, technical terms, and maths. But it’s not as complicated as you think. 

Your Superannuation Basics 

This is a basic guide about superannuation and covers. 

 

Note: This information is general in nature and does not constitute “financial advice” and should the reader wish financial advice, they would need to seek that out. 

 

Aboriginal and Torres Strait Islander People 

Care Search 

Brings together a range of resources and information to help the health care workforce and carers in providing palliative care for Aboriginal and Torres Strait Islander peoples. Culturally safe and responsive care is an essential part of good care. 

Palliative Care Australia 

Aboriginal and Torres Strait Islander Peoples Palliative Care Resources 

Discussing Choices – Indigenous Advance Care Plans 

For many Aboriginal and Torres Strait Islander People, talking about 'death and dying' can be uncomfortable. Culturally, discussing this topic can be perceived as 'tempting it' and viewing images of a person who has died or using their name in conversation can impact that person’s journey. 

Discussion Starters 

Aboriginal and Torres Strait Islander Discussion Starter – Working Out What’s Right for You. 

 

What is Death Anxiety? 

Life, Death, and the Anxiety In-Between 

The Order of a Good Death 

Death Anxiety 

Psychology Today 2018. Death awareness has a profound impact on our thoughts, feelings, and behavior. 

Death anxiety. The worm at the core of mental health 

Australian Psychological Society 2018. 

What Is Death Anxiety, And How Does It Affect Hospice Patients? 

Fear of death is ubiquitous. As far as we know, we are the only species on earth to have the ability to think about our future and to recognize the inevitability of our own demise. 

 

Additional Information 

A Cemetery Angel and the American HIV/AIDS Crisis 

The collective for Radical Death Studie, by Justin Cook 2019 

Death Café 

At a Death Cafe people, often strangers, gather to eat cake, drink tea and discuss death. The objective is 'to increase awareness of death with a view to helping people make the most of their (finite) lives'. 

Death, distance and the digital world 

“Today she sent me the link to the online memorial. Though she is next door, we are grieving at a distance.” by Amber H. Abbas 2020 

Dying matters, Hospice UK 

Hospice UK’s Dying Matters campaign is working with you to create an open culture in which we’re comfortable talking about death, dying and bereavement. 2012 

Reconsidering how we die 

“For more than 20 years, I have worked as a social worker in settings ranging from family services to emergency psychiatry.” By Colleen Deatherage, 2020 

Talk Death - USA 

Great site with articles on death practices, planning and awareness from around the world. Some articles you may find particularly interesting. 

Includes US resources – see the applicable sections of our toolkit for resources in NSW. 

The Collective for Radical Death Studies 

A source of knowledge for how death practitioners, death care professionals, students and scholars alike can all better understand death ways of people of colour and marginalized groups. 

The Good Grief Trust - UK 

The Good Grief Trust is for LGBTQ people and their families, funeral professionals and anyone who works with people from LGBTQ communities. It aims to empowered LGBTQ people so that they can make the choices that are right for them. 

The Order of the Good Death - USA 

The Order is about making death a part of your life. Staring down your death fears—whether it be your own death, the death of those you love, the pain of dying, the afterlife (or lack thereof), grief, corpses, bodily decomposition, or all the above. Accepting that death itself is natural, but the death anxiety of modern culture is not. 

As we rediscover past traditions and ask age old questions, several individuals and organizations are making it their mission to provide culturally competent death care.  

By JM, 2021  

What happens when trans people talk openly about death, and their plans around their death? By Kitty Perentesis, 2021 

“COVID-19 and AIDS: NYC Gays See Parallels, Contrasts” was the headline that ran on U.S. News on April 11, 2020.” By Jaime García-Iglesias, 2021 

On green burial and cultural appropriation, 2020 

 

Films, Documentaries and Web 

Ask a Mortician 

Caitlin Doughty is a mortician, activist, and funeral industry rabble-rouser. Caitlin has an educational YouTube series called Ask a Mortician. 

Advance Care Planning: A carer's story, Digital Health 2021 

Talk to your patients about adding advance care plan documents to #MyHealthRecord. It’s a safe and secure place to add their wishes or access them if there was a medical emergency and they couldn’t speak for themselves. 

Death 2.0: A Guide to Prepping for your Digital Death 

Digital Death is a concept that is not given much thought. What happens when you die in this world and the virtual parts of you go on existing? 

End Game  

A 2018 American short documentary film by Rob Epstein and Jeffrey Friedman about terminally ill patients in a San Francisco hospital meeting medical practitioners seeking to change the perception around life and death.  

End-of-Life Care for LGBT people 

Powerful personal experiences from LGB&T people nearing the end-of-life and those caring for them, highlighting the importance of meeting everyone's end-of-life needs sensitively. 

Four Tips to Overcome Fear of Death 2019 

How to stop worrying about death. (Anxiety; Thanatophobia Treatment) 

Gen Silent 

A 2011 documentary about LGBT people who fought the earliest battles for equality now face so much fear about discrimination, or worse, in health care/long-term care that they hide their past lives, are afraid to ask for help, and die earlier. But a small group of professionals is trying to change that. 

What matters to me: Talking about Palliative and End-Of-Life Care 

Australian Government Department of Health 2018. It can be difficult to talk about death or dying, but this is an important conversation to have with your loved ones. 

What's Wrong with Dying? | Lesley Hazleton | TEDxSeattle 2017 

The answer might seem simple, but in the hands of Lesley Hazleton, the question takes us on a surprisingly humorous and thought-provoking journey into what it would mean to live forever.  And whether we’d truly want to. 


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Definitions | Ageing as an LGBTQ+ Person  | Needing CareDeath PlanningGrief and Bereavement | Caring for OthersMoney Matters | Resources  


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